National Osteonecrosis Foundation
The National Osteonecrosis Foundation is made up of a group of patients, physicians, and others who want to see the end of this disease.
A Bone Disease That Few Have Heard Of..
Osteonecrosis – A bone disease that few have heard of. Somewhere between 10,000 and 20,000 people are diagnosed with this disease each year in the United States alone. Yet, with the population of the United States of approximately 274 million, these people are being lost in the crowd. They would like to believe that someone understands and cares. We Do! The National Osteonecrosis Foundation is made up of a group of patients, physicians, and others who want to see the end of this disease. Please read on if you would like more information on this foundation.
Our Mission
Today we are working at the frontier between what we know and what we need to know about osteonecrosis and Perthes’ Disease. Osteonecrosis means death of bone. This results from a wide variety of conditions, many poorly understood, which lead to major joint damage in children and young adults.
Our goal is to provide much needed funding for medical research and education of patients, physicians, and other health professionals. To all participating physicians, we offer routine informational updates and patient educational support. To all Perthes children, we offer hope for early diagnosis and improved care. To all osteonecrosis patients, we offer hope for discovery of the causes of this debilitating disease and new effective forms of treatment. Through the combined efforts of patients, industry, and caring friends, we will succeed.
Physican Members
Patient Members
Other Members
Major Corporations Given Support
More About Us
Since 1996, when we started with 6 physicians and a handful of patients and other interested parties, our membership has increased steadily every year.